Cavernoma Awareness Day

August 15, 2023 | Time: | Location: | Category: News & blog

Cavernoma Awareness Day 2023

Today we are looking to bring attention to a neurological condition that is often under the radar: Cavernoma. The aim is not only to raise awareness but also to provide hope of driving forward better treatments, and potentially even a cure.

Cavernoma, also known as cavernous angioma or cerebral cavernous malformation (CCM), is a cluster of abnormal blood vessels, typically found in the brain or spinal cord. These malformations can cause serious health complications, including seizures, headaches, neurological deficits, and in rare cases, haemorrhagic strokes. However, some people with cavernomas may live their entire lives without experiencing any symptoms or knowing they have the condition.

Cavernomas are relatively rare, affecting about 0.5% of the population worldwide. They can occur spontaneously or can be inherited genetically. Diagnosis typically happens after symptoms occur, or incidentally during an MRI scan for another medical reason.

Currently Clinical trials are taking place worldwide to enhance the understanding, diagnosis, and treatment of cavernoma. There is continual investment and cutting-edge research is conducted to uncover the genetic, biological, and environmental factors that contribute to cavernoma formation and progression.

Getting Involved

Cavernoma Awareness Day provides an invaluable opportunity to get involved and make a difference. There are several ways you can support the cause:

Spread the Word: Use your social media platforms to share information about cavernoma. The more people know about it, the more awareness we can raise.
Donate: Your generous contributions directly support research efforts.
Learn More: Knowledge is power. Educate yourself and others about cavernoma, its symptoms, diagnosis, and treatment options. The more informed we all are, the better.

To find out more or to get involved visit Cavernoma Alliance's website here.

On this Cavernoma Awareness Day, let us remember that every action counts. Let us continue to spread the word, support research, and strive for a world where no one has to suffer from the debilitating impacts of Cavernoma.